320: Caregivers of the patients with cerebral palsy in a regional rehabilitation Centre in Turkey

D.Yucel1, Z.A.Saglam2
1 Home-Care Department, MBA, Istanbul Medeniyet University, Göztepe Training and Research Hospital, Istanbul, Turkey; 2 Family Medicine, Ass. Prof, Istanbul Medeniyet University, Göztepe Training and Research Hospital, Istanbul, Turkey
Introduction: Home based care-giving is of importance especially in providing long-term home care of patients with cerebral palsy(CP).Since ongoing care is managed essentially at home in Turkey, family caregivers essentially function as de facto health providers. In this cross-sectional study the caregivers’ situation is evaluated through their socio-demographic features relevant to the care giving situation.
Material Method: Caregivers of 150 children with CP attending to a regional Centre at Bursa (Dr. Ayten Bozkaya Rehabilitation Centre) were invited for a face to face questionnaire and demographic information about the patient, the family and the caregiver was collected. The results are expressed in Tables 1, 2 and 3.
Results: The mean age of the CP patients (n=150) was 9.15±9.19(min. 1, max. 35 yrs), 63% of whom were boys. Caregivers were mainly mothers (88%).Only 26% of them had special education on rehabilitation of the patient. 75% of the caregivers declared that they didn’t have time for the other siblings and 78% declared ‘limited or no social activities’.Fortunately family unity was 96% present yet CP patient didn’t receive further attention (86%) in terms of rehabilitative activities.
Discussion: The psychological and social problems of the caregiver result with incompetency at managing the patient’s long-term dependence meaning less rehabilitative interventions at home. Low education level (76%) may be the reason for mismanagement of home-based interventions. Directorial strategies should be developed to in order to optimize the caregivers' social and psychological health and care recipient’s biopsychosocial improvement.

Disclosure: No conflict of interest declared